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A new study hoping to be set up at The Blond McIndoe Research Foundation with colleagues at Queen Victoria Hospital and the University of Brighton will seek to identify what enables burn survivors and their relatives to be active participants in research.
It will identify what would make participation relevant, timely, and in their contribution, find value to support their well-being. This new study still requires additional funding but hopes to find ways to help vulnerable and hard to reach groups participate in research.
The study aims to maximise time spent with burn survivors and their families, hearing about their priorities and understanding how continuing participation might be effected. This study will put patients at the centre of helping to devise relevant research programmes and builds on the legacy of Sir Archibald McIndoe and his early holistic approaches to patient care.
The Blond McIndoe Research Foundation depends entirely on donations to keep it at the forefront of burns, wound healing and melanoma research. If you wish to know more about its work, get involved in its activities or to donate to its research activity visit www.blondmcindoe.org